Whoops, sorry for the delay. I had most of this written and then forgot to post it. Yesterday kind of got away from me...
So, not great news this week. Ed had another set back and is back at Stanford Hospital receiving IVIG treatments. We still don't know why he has these waxing and waning symptoms, and the doctors don't seem to have a great idea either. All he can do as the patient is get through the treatments and hope that one of these times they stick. They may set up a schedule of treatments that gets Ed through so he can recover. There's a lot of speculation about what is going on. Ed is doing his best to keep up good spirits about it but he's pretty frustrated as you can imagine. He's ready to be better and able again.
Symptom wise, he's lost a lot of the gains he made with the plasmapheresis and we've also lost function of both sides of his face now so his speech is a little garbled. All in the course of maybe 3 days. He's pretty skinny. One of the tie ins with GBS is an increased metabolism apparently.
The IVIG really helped his face before, unlike the plasmapheresis, so fingers crossed that comes about again.
I want to reiterate to everyone that Ed will be ok. We're in the weeds now, but the prognosis is still really good and he will come around. He will walk, climb stairs, regain his facial expressions... That's what all the Dr's say, all the websites, and all the papers... Right now it's just about having faith in his body, the treatments, and waiting out this roller coaster ride. Please keep reaching out and remember, you don't have to talk about his health, just hearing about what you are up to helps to take his mind off things. Being back in the hospital is no fun and he doesn't have physical therapy to break up the day. So if you have a moment during your day and, a random thought pops into your head, reach out to him. :)
On my end, I'm holding up ok aside from a killer cold that crept in right as my mom left to see my sister on Monday. Nothing dire, normal cold stuff (nose, head, throat) and low grade fever, just supremely inconvenient and uncomfortable as you can imagine. I'm glad my favorite shows are finally starting up. I've been needing some laughter and distraction in TV and good music - thank goodness for Spotify.
My 16 week appt at the Dr's went well. Baby's heartbeat is strong and I'm on the right track. Still have homework to eat more and try to get and stay well, but truly, all is ok. All is good in babyland. I'll try to get a picture inserted here later, but odds are I won't have a good one until I go visit Ck in CO this weekend and she or mom can snap one. I'm pretty excited for my niece to get here so I can start teaching her to sing asap :)
I'm longing desperately for the holidays. Maybe it's all the pumpkin-food talk or just missing friends and family, but I just wish it were holiday season.
How far along? 16 Weeks
How Big Is Baby? An avocadoSo, not great news this week. Ed had another set back and is back at Stanford Hospital receiving IVIG treatments. We still don't know why he has these waxing and waning symptoms, and the doctors don't seem to have a great idea either. All he can do as the patient is get through the treatments and hope that one of these times they stick. They may set up a schedule of treatments that gets Ed through so he can recover. There's a lot of speculation about what is going on. Ed is doing his best to keep up good spirits about it but he's pretty frustrated as you can imagine. He's ready to be better and able again.
Symptom wise, he's lost a lot of the gains he made with the plasmapheresis and we've also lost function of both sides of his face now so his speech is a little garbled. All in the course of maybe 3 days. He's pretty skinny. One of the tie ins with GBS is an increased metabolism apparently.
The IVIG really helped his face before, unlike the plasmapheresis, so fingers crossed that comes about again.
I want to reiterate to everyone that Ed will be ok. We're in the weeds now, but the prognosis is still really good and he will come around. He will walk, climb stairs, regain his facial expressions... That's what all the Dr's say, all the websites, and all the papers... Right now it's just about having faith in his body, the treatments, and waiting out this roller coaster ride. Please keep reaching out and remember, you don't have to talk about his health, just hearing about what you are up to helps to take his mind off things. Being back in the hospital is no fun and he doesn't have physical therapy to break up the day. So if you have a moment during your day and, a random thought pops into your head, reach out to him. :)
On my end, I'm holding up ok aside from a killer cold that crept in right as my mom left to see my sister on Monday. Nothing dire, normal cold stuff (nose, head, throat) and low grade fever, just supremely inconvenient and uncomfortable as you can imagine. I'm glad my favorite shows are finally starting up. I've been needing some laughter and distraction in TV and good music - thank goodness for Spotify.
My 16 week appt at the Dr's went well. Baby's heartbeat is strong and I'm on the right track. Still have homework to eat more and try to get and stay well, but truly, all is ok. All is good in babyland. I'll try to get a picture inserted here later, but odds are I won't have a good one until I go visit Ck in CO this weekend and she or mom can snap one. I'm pretty excited for my niece to get here so I can start teaching her to sing asap :)
I'm longing desperately for the holidays. Maybe it's all the pumpkin-food talk or just missing friends and family, but I just wish it were holiday season.
Now for the bump update figures....
How far along? 16 Weeks
Sleep: Amazingly, it's the one thing that soothes my occasional back pain so I'm getting as much of this as I can.
Best moment this week: Bustin' out the maternity jeans I bought and having the Dr. say that I gained a little weight. Finally!
Movement: Still too tiny.
Symptoms: Back pain right around my hips.
Food cravings/aversions: Apparently, for the first time ever in my life, stress makes me not want to eat. So my aversion? All food - when I'm stressed out. Of course I'm still eating, Dr's orders, but boy is it hard when nothing sounds good.
Gender: tbd
Belly Button in or out? In
What I miss: Beer I suppose! And wine. The other night was filet mignon for dinner - cooked 'well' which breaks my heart (normally I like it mooing). Had that with a nice glass of orange juice. Travesty.
What I am looking forward to: Looking pregnant. Right now I just feel silly telling people I'm expecting and they immediately look at my 'beer belly.'
Funny moment of the week: Mom going to BuyBuyBaby with me and after walking around for a moment, deciding she could just leave the job of picking things out to Carolyne. I completely agree. Ck you have your marching orders :)
Labor Signs: Ha.
Weekly Wisdom: Be grateful for what you have because it can all change so quickly. And when they do, try to just roll with the change. No expectations, just be present.
Milestones: Breaking in the maternity jeans and stepping into a Buy Buy Baby for the first time. Talk about overwhelming and a reality check. 700 dollar strollers? No thank you, I'm not insane. I miss my doing my wedding registry, when it was a question of what pan makes the crispiest loaf of bread - not car seats, you know, things that directly decide the life or death of a tiny human.
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